Parkinson's Swindon and District

 

Recent news

 

Dance for Parkinson’s Class Dates

 

January – March 2018 (First Quarter)

12th January

19th January

26th January

2nd February

9th February

16th & 23rd February Half term – NO CLASSES

2nd March

9th March

16th March

23rd March

 

Paul Mayhew-Archer - The Funny Side of Parkinson's

 

 

Urgent Message From Dr.Lennox reference:- Flu Jabs and Vitamin D

I would be very grateful if you could remind our lovely members that we strongly recommend that they take up the offer of flu vaccination as early as possible this coming autumn.

 

People with PD are slightly more likely to catch flu, and more likely to become poorly if they do. Last year’s vaccine was very effective and there are no particular side-effects in people with Parkinson’s. Ideally other members of the household should also be vaccinated, to reduce the risk of spreading it to the person with PD.

 

NICE have recently issued updated guidelines on PD. These include the recommendation that everyone with PD consider taking a daily calcium and vitamin D supplement to strengthen their bones and immune system. Your GP will be happy to prescribe this!

 

Message from Paul Mayhew-Archer. November 5th 2017

A couple of years ago I presented a little documentary called “Parkinson’s: The Funny Side." It was about my life with Parkinson’s as I approached the end of my “five good years"

 

I’m still going and I am now back with another documentary. It’s even littler. It’s 10 minutes and it’s an update. It’s also about my first appearance at The Comedy Store in London doing 10 minutes of stand up about Parkinson’s.

 

It is on "Inside Out’ in London and the South tomorrow evening, Monday Nov 6th, BBC One 7.30pm.

 

If you do not live in those areas it will then be available on iplayer for 28 days under “inside Out South”. The original documentary can also be found there as that is now permanently available.

 

Also, on December 1st I will be at The Comedy Store again making my second appearance.

 

Aviva Community Foundation

This is the link to vote for our Grant Application with the viva Community Foundation. It is to replace the £11,000 to help fund our Exercise Programme lost when NHS Budgets cuts meant there was a choice to recruit another Parkinson’s Nurse to replace Liz or pay us £11K towards our Exercise Programme.

 

Theme - Delaying the Progrression of Parkinson’s

 

Please vote and share far and wide with family and friends requesting they vote too. Voting opens at 9am on Tuesday 24 October.

 

You may have to register to vote but that does not commit you to anything but to vote.

 

Parkinson’s Awareness Week 2018

Instead of our usual Parkinson’s Awareness Week, we’ll be focusing our efforts on World Parkinson’s Day – taking place on 11 April 2018.

 

Last year on 11 April, Parkinson’s UK partnered with European Parkinson's Disease Association to create Unite for Parkinsons. More than 4,600 people downloaded the toolkit – from around 80 countries across the world – to take part on this day.

 

Due to its success in 2017, Parkinson’s UK are looking at how they can enable the local networks and supporters to take part and create an even bigger day in 2018. They will be communicating more details over the coming months. For inspiration, or to find out more about World Parkinson’s Day and Unite for Parkinsons, visit www.worldparkinsonsday.com.

 

Over to us

If we are planning an event or activity in April 2018, they say it would be great if we could hold our event on World Parkinson’s Day. If that’s not possible, the week of the 9 April, the weekend before or after. And they suggest describing it as an event to mark World Parkinson’s Day.

 

We will keep you in the picture

 

Dave Logan

Branch Chair

 

Coffee Mornings for October, November and December 2017

Justin Tomlinson premises

Monthly Coffee Mornings will take place on the first Tuesday of each month at Justin Tomlinson’s (MP) premises free of charge for our use. It is located at the Orbital Shopping Centre which is on a main bus route, has plenty of free parking at the rear parking area of the Orbital including disabled and is close to the building. There are also plenty of shops to visit while there, including Next, M&S, Boots, New Look, Outfit, Homebase and Asda.

 

It is spacious, has a small kitchen area, including a water boiler. There is a disabled lift to get to the upper floor and disabled toilets. It is the large glassed area on the upper floor and the entrance is in the left side as indicated in the photo.

 

Tuesday 3 October. Hosted by Coffee Morning Volunteers Sandra Wanless & Gill Mitchell and Committee Membere Ruth Panting. 10am to 12pm. Those hosting have access from 9.30am.

 

Tuesday 7 November. Hosted by Phyllis & Charlie Roberts, also volunteers. 10am to 12pm. Those hosting have access from 9.30am.

 

Tuesday 5 December. Hoster by Derelys & Jim Campbell (Volunteers) and myself. 10am to 12pm. Those hosting have access from 9.30am.

 

Please note we have a guest attending this meeting to meet and talk to you and get your opinions. The guest Sally Wood, the Parkinson’s UK, Area Development Manager foe Dorset, Wiltshire and Hampshire. Please do attend and meet Sally who is looking forward to the opportunity to talk to the people who matter.

 

2018 Tuesday Coffee Mornings - Volunteers needed for the following dates please

 

2nd January

6th February

6th March

3rd April

1st May

5th June

3rd July

7th August

4th September
2nd October

6th November

4th December

 

Thank you

 

Dave Logan

Branch Chair

 

Thank You from Parkinson’s UK for Branch Support of BOXCAM

I just wanted to get in touch to say a massive thank you to you and the branch for all your help at the BOXCAM event last weekend, having you there supporting us on the day was brilliant and it really helped us out. The cyclists loved the tea and coffee you provided and were impressed that you were all volunteers. I am also grateful for all the support you gave us in the lead up to the event by spreading the word.

 

The event has so far raised nearly £70,000 so thank you for being a part of this. The money as you know is going towards research for Parkinson’s. I would be grateful if you could pass on my thanks to the rest of the group, and please let me know if you have any feedback for us on the running of the event.

 

Julia Selby, Events Project Manager - Cycling, Parkinson's UK

 

Flu Jabs and Vitamin D - message from PD Specialist Dr Lennox

I strongly recommend that you take up the offer of flu vaccination as early as possible this coming autumn.

 

People with PD are slightly more likely to catch flu, and more likely to become poorly if they do. Last year’s vaccine was very effective and there are no particular side-effects in people with Parkinson’s. Ideally other members of the household should also be vaccinated, to reduce the risk of spreading it to the person with PD.

 

NICE have recently issued updated guidelines on PD. These include the recommendation that everyone with PD consider taking a daily calcium and vitamin D supplement to strengthen their bones and immune system. Your GP will be happy to prescribe this!


Walking Football is moving venue with effect from 2 October to PlayFootball.

The new contract has been signed and sent to Parkinson's UK. Comments back were that "it sounds like a fantastic venue and relationdhip".

 

The new venue is set up for such a purpose, safer. The pitches are fully enclosed with netting and soft 4g playing surfaces. The costs is less than at present and at a special rate for us and includes free tea and coffee in their café area after playing helping to make it a more social event. Also if we go over time or need two pitches they won’t charge any extra as they want to support us as a charity recognising the reasons why we have exercise programmes for people with Parkinson's.

 

They have a permanent first aider on site including a defibilator.

 

You will get full info on the venue, address etc. here

 

Dance for Parkinson's with Swindon Dance

Term dates for Autumn/Winter 2017 Here

 

Parkinson’s Coffee Mornings

I can confirm that following the General Election and the re-election of Justin Tomlinson that the monthly Coffee Mornings will take place from 10am to 12pm.

More detail here

 

Anniversary Event for the Swindon & District Branch

The 16th March 2018 will mark the 40th Anniversary of the inauguration of our Branch. We welcome any suggestions from our Branch members on how we should celebrate this milestone.

 

Dave Logan

Branch Chair

 

Royal Society of St George Wiltshire Branch

Thank you to Branch Member Pat Wallington who is secretary of Royal Society of St George Wiltshire Branch. Pat kindly persuaded the Society to name the Swindon & District Branch of Parkinson’s UK as their Charity for 2018.

 

Dave Logan

Branch Chair

 

Parkinson's Awareness Week 2017

Full schedule for Swindon and District here

 

Swindon Therapy Centre Services

The following services are available at the Swindon Therapy Centre for MS and Other Neurological Conditions during April.

 

April Diary Dates

Citizens Advice, 10:00am – 12:00pm on the following dates:

Thursday, 6th April

Wednesday, 12th April

Thursday, 20th April

Thursday, 27th April

 

If you would like an appointment please see the Support Workers or telephone 01793 481700 to book a slot.

 

Swindon Carers will be in the centre, 10:00am – 1:00pm on the following dates:

Monday, 3rd April

Wednesday, 12th April

Thursday, 20th April

Wednesday, 26th April

 

Rupinder will be in the Centre from 9:30am – 12:30pm on the following dates for Threading, Nails and other Beauty Treatments:

Wednesday, 5th April

Monday, 10th April

Thursday, 20th April

Friday, 28th April

 

Midweek Socialites – Thursday, 6th April - 19:00pm until 20:30pm

This is an evening social group for people with MS and other neurological conditions. This is a great group, especially if you are unavailable in the day. Please come and meet us and make some new friends who can understand the challenges you may face. We meet at the centre. We look forward to seeing you.

 

Foot Specialist Visit – Monday, 8th May

Alan will be in from 10:30am – 12:30pm on this day. If you would like to book an appointment please sign up in the members area or telephone 01793 481700 to book.

 

The address is.

Swindon Therapy Centre

Bradbury House, Westmead Drive, Swindon, SN5 7YS

 

Dance for Parkinson's with Swindon Dance

Dance for Parkinson’s is being added to our Exercise Programme starting Friday 28th April. Following an initial 3 month trial, should sufficient numbers continue to support this new venture, it will continue on a permanent basis providing funds remain available.

Details here

 

Carer Support - Respite Programme Enhancement

The Parkinson’s Swindon & District Branch “Thursday Parkinson’s Respite” to help support carers of people affected by Parkinson’s that started in February is being enhanced and improved. Details here

 

Living Well with Parkinson’s

This free 4-week course is for people who have a diagnosis of Parkinson’s Disease. The next course is Fri 27 January. However if you would like to attend a future one, please apply as per the flyer here.

 

Dance for Neurology

Following on from the talk by Swindon Dance on Friday 13 January Helen Ganberg has requested we send out the links below.

 

Helen has spoken to their specialist teacher Sarah Fletcher who has been trained in Dance for Parkinson’s and she has said that some other centres do include those with other neurological conditions such as MS.

 

As was explained at the meeting the process involves seated moving, stood supported moving and then if possible moving away from the chair. It was also very well demonstrated at the meeting with over 50 people joining seat dance movements to music and all seemingly enjoying the experience.

 

The scheme originally started in this country at English National Ballet but our teacher Sarah uses a range of dance styles- not Ballet.

 

Here are some links to Dance for Parkinson's websites and articles:

 

http://www.ballet.org.uk/learning/dance-parkinsons/

http://danceforparkinsons.org/

http://www.communitydance.org.uk/DisplaySingle.aspx?iid=866&dbview=867&dbrow=41077

http://www.danceforparkinsonsuk.org/

https://www.youtube.com/watch?v=0UqtB6QU4AY

https://www.youtube.com/watch?v=ovbiV5yb2sg

 

I hope these will give you more of an idea of why and what is involved.

With best wishes

Helen

 

Healthwatch Swindon Invitation

An invitation to work with Healthwatch Swindon to influence health and social care services.

Details here

 

Swindon & District Branch Carer Support

Following a success Grant Application from the Wiltshire Community Foundation to finance the first two years of Carer Support, the Swindon & District Branch is pleased to announce the launching of a Respite Programme to help support our Carers. This grant is specific for and allows us to fund 300 hours of respite per annum. If successful and funds or grants permit we hope to add to the yearly total of funded hours. Details here